A message from Roy Parrish, our founder.
PACS1 is an ultra-rare genetic disorder only found currently worldwide in 100 children including my 12 year old daughter Nina, there is no cure and this has only been diagnosed in the last 4 years.
We need to raise Funds to carry out real research and then ongoing support to the family’s as for some of the children they cannot eat and are fed through tubes and fit almost every day. The children will always be living with their parents and later on in life many will have to be in homes which as you can imagine is heart breaking for all involved.
After the successful run in 2017 where we created the challenge of buying a car for £1000, and drive it through Europe finishing in Monte Carlo. We have decided to open the event and allow drivers to bring any car that they wish! After a successful 2019 run to Venice we have decided to return to monte carlo for 2020! Click here to learn more!
